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Physical disability - Resources

spina; bifida; cerebral; palsy; muscular; dystrophy; hydrocephalus; brain; injury; spinal; hemiplegia; diplegia; quadriplegia; ataxia; physiotherapist; speech; pathologist; occupational; therapist; genetic; counsellor; dystrophies; physical; disability; Duchenne; genetic; congenital; spinabifida;

Contents

The resources listed are correct at the time of publication. We can be advised via the 'enquiry form (subject - Links query)' of any changes needed, or if there are any other resources available in Australia not included in this list.

South Australia

  • Department of Families and Communities (DFC)  Disability Support and Services  
  • Novita Children's Services (formerly Crippled Children's Association of SA Inc)
    Address: Days Road, Regency Park
    Postal Address: PO Box 2438, Regency Park, 5942
    Tel: 8243 8201
    http://www.novita.org.au
  • Muscular Dystrophy Association of South Australia
    Address: 36-38 Henley Beach Road, Mile End, 5031
    Tel: 8234 5266
    www.mdasa.org.au
  • Spina Bifida and Hydrocephalus Association of SA
    Address: 9 Kensington Road, Norwood SA 5067
    Postal Address: PO Box 4069, Norwood South, 5067
    Tel: 8366 5900
    www.spinabifida.asn.au
  • Department of Child and Adolescent Development and Rehabilitation
    C/- Women's and Children's Hospital
    Address: 72 King William Road, North Adelaide, 5006
    Tel: 8161 7367
  • Early Intervention Network Coordinators provide information and support for families with children 0-8 years with developmental delay, disabilities or at risk of developmental delay.
    Contact Child and Youth Health regional offices or the Central Office.
    Tel: 8303 1500
  • Playgroup SA Supported Playgroups
    http://www.playgroupaustralia.com.au/sa/go/supported-playgroups
  • Royal District Nursing Services
    Address: 31 Flemington Street, Glenside, 5065
    Postal Address: PO Box 247, Glenside, 5065
    Tel: 1300 364 264
    http://rdns.org.au/services/disability.php
  • Domiciliary Care Services
    http://www.domcare.sa.gov.au/
    • Eastern Domiciliary Care
      Address: 207 Hampstead Road, Northfield, 5085
      Tel: 8222 1796
    • Northern Domiciliary Care
      Address: Haydown Road, Elizabeth Vale, 5112
      Tel: 8182 9277
    • Southern Domiciliary Care
      Address: 670 Marion Road, Park Holme, 5043
      Tel: 8277 3366
    • Western Domiciliary Care
      Address: 19-21a Belmore Terrace, Woodville Park, 5011
      Postal Address: PO Box 129, Woodville, 5011
      Tel: 8222 8000
  • Independent Living Centre provides information and advice on disability-related aids and equipment.
    Address: 11 Blacks Road, Gilles Plains, 5086
    Tel: 8266 5260
    Country callers: 1800 800 523
    http://www.ilcaustralia.org.au/home/sa.asp
  • South Australian Clinical Genetics Service
    C/- Women's and Children's Hospital
    Address: 72 King William Road, North Adelaide, 5006
    Tel: 8204 7375
    http://www.wch.sa.gov.au/services/...
  • Carer Resource Centre provides information and advice on available services for carers, particularly respite services.
    Address: 58 King William Road, Goodwood 5034
    Postal Address: PO Box 410, Unley, 5061
    Tel: 8271 6288
    Country callers: 1800 242 636
    www.carers-sa.asn.au/resource.htm
  • Disability Information Resource Centre provides contact details for a number of support groups for individuals with physical disabilities.
    Address: 195 Gilles Street, Adelaide, 5000
    Tel: 9236 0555, TTY 8223 7579
    Country callers: 1300 305 558
    http://www.dircsa.org.au 
  • Gowrie Resource Centre and Bookshop
    Address: 43 Dew Street, Thebarton, 5031
    Tel: 8352 5246.
    http://www.gowrie-adelaide.com.au/cms/?q=node/16
  • When choosing a preschool or school, you may wish to seek advice from the special education staff within the Department of Education and Chhildren's Services (DECS), Association of Independent Schools of South Australia or Catholic Education SA.
    • Department of Educationand Children's Services Disability Services. Contact your local District Officer (see local telephone directories) or the State Office for general information. Telephone 8226 1527. Country callers should phone 1800 088 158.
    • Association of Independent Schools of South Australia Special Education Advisers. Contact the Special Learning Needs Coordinator. Telephone 8179 1400.
    • Catholic Education SA Special Education Consultants. Contact the Supervisor of Special Education. Telephone 8301 6600.

Books for parents

  • Children's Society, 'Brenton's Story', London, 1996.
  • Crippled Children's Association, 'You're Not Alone: Parent Information Folder', Adelaide. (regularly updated).
  • Finnie, Nancie R, 'Handling the young child with cerebral palsy at home', Butterworth-Heinemann, Oxford, 1997.
  • Lipscombe, Jodi, 'Lifting the Lid on Kids: Duchenne Muscular Dystrophy', Rocky Bay, USA, 1999.
  • Miller, Freeman & Bachrach, Steven J, 'Cerebral palsy: a complete guide for caregiving', John Hopkins University Press, Baltimore, USA, 1995.
  • Muscular Dystrophy Association of South Australia, 'Everybody's different, nobody's perfect', Adelaide, 1991.
  • Muscular Dystrophy Association (USA), 'Journey of Love: A parents' guide to Duchenne Muscular Dystrophy', Tucson, Arizona, 1998.
  • Nordgren, Ingrid, 'Tomas: my multiple-handicapped child', Deakin University, Melbourne, 1992.
  • Thompson, Charlotte E, 'Raising a child with a neuromuscular disorder: a guide for parents, grandparents, friends and professionals', Oxford University Press, Oxford, 1999.

Books for children

  • Norris, Rachel, McLevie, Susan & Cutler, Ann, 'CP and me', Cerebral Palsy Association of Western Australia, Perth, 2000.
  • Lutkenhoff, Marlene & Oppenheimer, Sonya, 'SPINAbilities: a young person''s guide to spina bifida', Woodbine House, Bethesda, USA, 1997.
  • Pettenuzzo, Brenda, 'I have spina bifida', F Watts, Sydney, 1987.
  • Pettenuzzo, Brenda, 'I have cerebral palsy', F Watts, Sydney, 1988.
  • Pettenuzzo, Brenda, 'I have muscular dystrophy', F Watts, Sydney, 1989.

General

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The information on this site should not be used as an alternative to professional care. If you have a particular problem, see a doctor, or ring the Parent Helpline on 1300 364 100 (local call cost from anywhere in South Australia).

This topic may use 'he' and 'she' in turn - please change to suit your
child's sex.

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